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Viewing Member - Elle_and_Rocky


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Wednesday, June 9, 2010, 6:27:38 PM- Correction to - Today is the 1st day of the rest of my Life..................
In my last blog posting I mistakenly wrote Anti - Immune it should of read AUTO - IMMUNE.

Im sorry for this mistake but where my heads been lately i am surprised that i got the rest of it right.

Love n Hugs

Elle x
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"party on......................"
- wild 1


Wednesday, June 9, 2010, 12:38:07 PM- Today is the 1st day of the rest of my Life..................
Hello Sweeties

Well Rocky and I went to the docs and got results from the MRI and my blood tests.

Firstly the blood test results were fine at this time and my Thyroid medication strength does not need to be changed in any way.

Secondly, the MRI results - well that was as clear as the CT scan on my brain - it wasnt any clearer and still showed that i have some white spots and areas in/on my brain meaning and showing signs of my brain atrophying (basically means that i have some brain shrinkage and therefore it is losing some functionality - apparently this happens as you age). My doc consulted with a neurologist and has come to the conclusion that the next step is for me to have a Lumbar Puncture (meaning they want to take some spinal fluid from my spine and test it for anti-immune stuff- means a needle being put into my spinal column), but doc said that is up to us if we want to do it - if not i can just be monitored to see if i get worse.

We still havent had the bill in for the CT or MRI god knows how much they will be - Rocky has told me not to worry about the debt that will put us in, so i reckon we wont be moving this year - i so wanted to move into somewhere that has a small garden or yard so we can sit outside and maybe i can get a pet.

Multiple Scleroris or mini-strokes have NOT been ruled out at this stage - so the jury is still out on that one, MS could be an underlying factor to my condition but now it could be the anti-immune stuff (i think that means that my body is turning on itself similar to what MS does - thats what the Lumbar Punsture will find out) All that money we will have to pay for the MRI and it didnt really show anything different, they have asked me if i have had Meningitis or if i have had a trauma to my head area atall - as far as i know i havent had any.

So really we are still none the wiser - but it has in a strange way made us feel a little better.

I have to have some more blood tests done in a few weeks time, one of them is to check on my Thyroid, and also im gonna have a Cholesterol check done to see if i have high cholesterol and if that is causing a blockage stopping or hindering any blood flow to my arteries or to my brain.

So all in all - i think im just getting old and my age is catching up with me - lol.

I think that is all for the moment - if i think of or remember anything else i will let you know.

Oh Rocky and I think i should keep my brain active - so i shall be doing some brain stimulating stuff - like playing word games and trivia stuff and doing crosswords/puzzles and anything else - im sure it wont hurt me any.

My Elliptical machine is a god send - i have now upped my time on it after doing 5 minutes 3 times a week on it for 2 weeks - i now am doing 6 minutes 3 times a week - gradually building myself up to 20-30 minutes - i know this dosent sound a lot but believe you me it makes a hell of a difference.

I would like to thank all my NN friends for their support, well wishes and prayers - they really did help me smile

Love, hugs and kisses
Elle
xxxxxxxxxxx
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"I want to offer you my support to. Hopefully you will still come thru this ok"
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Saturday, May 29, 2010, 9:25:18 PM- Results????
Still waiting for the results - fingers crossed No news is Good news Right?
Well 8th June is next docs appointment unless i get a phone call before hand - hopefully (i think) the results will be in then.

Elle x
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"In our thoughts, sending you our positive thoughts across the atlantic. keep your chin up, try not to worry, good luck for tuesday.

Mr and Mrs Jag x"
- jag6771


Tuesday, May 25, 2010, 2:22:09 PM- Waiting Game Again!
Hello Everyone smile

As promised i am keeping you all updated.

Rocky helped me through the day of waiting by taking my mind off of the MRI, we brought an eliptical machine the other day so i can now exercise in my own place and wont be weather hampered - so now i can walk whenever i want to. So we put it all together and today i have used it for the very first time - i did 5 minutes on it today and im knackered lol - will be building myself up to 1/2 hour and then hopefully in time an hour (maybe not all at one time).

Well the MRI has been done and now have to wait 4 days for the results to get to my doctor (maybe/hopefully i will find them out by the weeks end).
I have never had an MRI before and had heard some things about them (not all good). Anyway the gal came and got me (clutching my meditation cd in hand only to be told that the cd player was not working - what a bummer!!! - so i opted for peak fm radio). I laid down on the thin thing they call a table (not at all comfy), ear phones were put on me and then this visor thingy was put over my head and then i was pushed into the MRI scanner - and YES it IS claustrophic - the machione is so close to you and i had to close my eyes or i would of lost my composure (what i had left).
The radiographer spoke to me through the headphones and asked if the volume of the music was ok and then she told me what was about to happen with the machine noise etc. Geez that machine is so noisy.
I could hear the radio station playing, had my eyes closed all the time and then after a few minutes it happened....... Tears streamed down my face uncontrollably my body started to shake - i was begining to loose it big style ..... Another tune came on the radio - i began to regain myself only to loose it a couple of times more. Then i heard the radiographer say that i was gonna be pulled out of the machine to have some dye injected into me for more pictures of my brain to see if there are any tumours or blockages, then i went back into the scanner for about another 12 minutes.
Then it was over..... Thankgoodness for that....... If i have to have another MRI i am going to ask to be sedated cos i really couldnt handle that again.
I came out with a headache and a jaw ache....... jaw ache???? you may well ask.... i tensed up so much in the scanner that my teeth clenched together really hard - still hurting today.
Well thats my blog for today.

Elle
x
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"Keep going girl!!
You done good!!
Thinking of you lots!!!!"
- scot69er


Monday, May 24, 2010, 8:40:16 PM- Its a Waiting Game .....
Hello everyone,

Well today is the day of my scan, just waiting for the clock to tick away the minutes.........
I have sorted out some meditative music (Sacred Spirit) to play while i am in the machine for 40 mins, will be the longest 40 minutes i have stayed still other than sleeping.
Will post another blog tomorrow to let you all know how it went.... Then more waiting for the results. Ho Hum.....

Elle
x
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"ya know i,m thinkin bout ya:)))"
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Tuesday, May 18, 2010, 3:28:01 PM- MRI scan
The appointment has been made for the MRI, it's on Monday 24th May.
40 minutes of being enclosed in a machine (hope i cope ok) im a little scared of enclosed spaces.
They did say i could take my own music in and listen to that while it's happening, but i don't think they will want me to be bopping about to Meatloaf.

Thankyou very much to the gang (you know who you are) for your kindness. xoxoxoxoxooxoxox

Love and hugs

Elle x
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"thanks for the well wishes and kind thoughts. Keep all your fingers crossed. xxx Elle x"
- Elle_and_Rocky


Sunday, May 16, 2010, 10:10:37 PM- Update #2
Hello everyone smile

Its not pretty news unfortunately, ive spent most of today just keeping myself busy.
The results of my CT scan are in. The scan was abnormal I now have to have an MRI on my brain - the docs diagnosis thus far is i could have had mini-strokes or I have MS the MRI will help us find that out. It's not the news we were hoping for - so i do ask everyone for support , prayers and love.
We are finding this a rough time at present so please bear with us.
Yes I have been crying a lot and no doubt a lot more tears to come.
I dont know if we shall continue to post pictures but we do have some already done, just waiting to pluck up the energy to post them.

Love and hugs to all.


Elle
x
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"Thankyou very much everyone for your kindness xxxx Elle x"
- Elle_and_Rocky


Sunday, May 9, 2010, 4:18:24 PM- Update #1
Well the CT scan has come and gone, will find out the results on Friday.
The scan was such a palava, well not so much the scan but the registration, we phoned them a day before to find out how much it was going to cost us and they said around $300 (that was our co-pay), but when we got there we was told it is going to cost around $1,000 - $2,000 (just because we dont have any insurance)maybe a little more, OMG and WTF. Needless to say we are not happy bunny's, but i did have the scan - alot of money to pay out if they find nowt wrong, just aswell they have a payment scheme, guess thats going to take a long while to pay off. God help me if I am really ill, maybe it will be cheaper to bury me than treat me. This healthcare stuff sucks, and it really needs to be made affordable so everyone can live.
I'm really lucky in other ways though - I am married to a great guy who LOVES me and whom I LOVE tremendously, finding him later in my life is probably the best thing that has ever happened to me (apart from my kids).
For those of us who has had a 2nd chance of Love - make the most of it and be true to yourself.
For those of you who have found Love in the first place cherish the person that you are with and don't fuck it up! Not everyone is lucky to find Love a second time!

Will keep you posted.

Elle
x
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"hug,s sexy elle
"
- wild 1


Friday, May 7, 2010, 4:55:42 PM- Update
Hello Folks,

Just to keep you up to speed.

I have been diagnosed this week with an imbalance of Thyroid Hormone (under active Thyroid).
Today i am off to have a CT scan on my brain with and without contrast. and i am what you may say scared somewhat. I shall try to keep you all up to date on the comings and goings of what's going on.
Be patient as i have to be.

Love and Hugs

Elle
x
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Sunday, May 2, 2010, 9:28:30 PM- Saturday Photo Session .....
Hello Naughty NNers smile

Yes Rocky took some more photos on Saturday.
I must say a few quite daring ones too. shame you can't see them all at once.
You will just have to wait ............ Upto 6 pics at a time you can see. I think that is enough to wet your appetites, we dont want to spoil you smile
Well ............. not too much........
I could tell you what the content is going to be but then it wouldn't be too much of a suprise now would it?
All I can tell you is this ....... (no toys were harmed in the production of some of these photos).
And That's All She Wrote.......

Elle
x
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